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The Story Behind The Title

Diego refers to his body parts as if they are separate from him.  Like when he is kicking my seat in the car I tell him to stop and then he repeats the command to his feet “stop it feet”, when he is hungry he says “my tummy is hungry’ etc…One Saturday a few months ago we had a super busy day, Lyric had a soccer game, D’s school had a carnival, and there was a street fair in our area.  I was already pretty concerned at how Diego was going to do with all of the stimulation and even suggested to him that we skip his school carnival, but he wasn’t having that so we went on with the day.  Lyric’s soccer game went well, Diego got to run around and really enjoyed watching his brother play.  The school carnival was quite possibly the most crowded, loud, chaotic ordeal I had ever been to.  I was overwhelmed, so I could only imagine how Diego felt.  I asked Rickey if we should leave and he thought Diego was doing alright so we stayed.  I also think that  if I tried to rip Diego away from the cotton candy and shaved ice he may have passed out.  I know he shouldn’t have that much sugar, umm but you try telling a four-year old he can’t have what everyone else is having all around him.  *sigh*  We only hung out for a little bit and then we headed home.  Diego was on a major sugar high and I was hoping that once we got home the routine would help him a bit. 

It didn’t. 

The street fair is a block away from our house and there is no ignoring the music, food and people.  Lyric and Diego begged me for an hour and a half to take them and finally I caved.   We got about 1 1/2 blocks in and Diego just stopped. There was a girl doing this cool hula hoop thing and he just plopped his bum down on hte sidewalk and watched for a few minutes, mesmerized.  I was a little concerned because that was out of character for Diego, so I sat next to him on the sidewalk and asked him if he was alright and my little boy looked at me and said “mommy, my brain wants to go home”.  I gave Rickey the look, picked up my baby and practically ran home. 

You could just see it in his eyes that he couldn’t take it all anymore. 

There was never any question of what I would name this blog, his words say it all.

4 responses »

  1. Shivon,

    I came across your son’s story about Dino Dan. If you will e mail me your address, I will make sure that Diego receives a photo of Dan. I told “Dan” about Diego and he wants to send him a note.


    Ann (Dino Dan’s mom in real life)

  2. This is interesting – I have Aspergers and I sometimes talk about my body parts like that, although only to people who know me well, because I know most people don’t talk like that. But I say things like ‘My tummy isn’t happy’ and ‘My brain wants to sleep’ – because things do feel localised to specific parts of my body. I think it’s because I don’t have a clear overall sense of self as a whole, but as different fragments. So I can totally relate to the feeling of ‘My brain wants to go home’.

  3. oh, you made me cry too. My 4 yr old does that as well!! He tells me “his bones made him do (x,y,z)” Good for you for seeing that in him and knowing exactly what he needed to do.
    I look forward to reading more from you.

  4. Oh! You made me cry the ugly cry Shivon!
    That story is so touching, beautiful and heart wrenching all at once!
    wow is all I can say!


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