I have written at least five blog entries in my head over the past two weeks.
Unfortunately none have made it here.
Christmas, bronchitis, school issues, insurance issues and regional center prep have taken up more time than they should.
Christmas went pretty well this year, since receiving our ASD diagnosis I have had to change the way I think Christmas should be. I think it was either C’s mom or Roc’s mom that commented on a Thanksgiving blog that as parents of children on the spectrum we might have to make new and different traditions that fit OUR family. So that is what I did this Christmas and it helped.
Bobby the Elf was a hit and really helped to bring ‘Santa’ to life for Diego. Lyric a.k.a Super Big Brother continues to amaze me, he is so dialed into Diego and has saved the day numerous times in the past two weeks. When I get as sick as I was and can’t be all that I usually am to Diego, he acts out. Mommy and Christmas break were really screwing with his routine and he let us know….frequently. This time of year Rickey works so hard and is barely home, so he couldn’t be much help, but then Super Big Brother came to save the day. Lyric saw I needed help and just stepped right in. Lyric is guaranteed to get Diego out of any bad mood pre tantrum, and post tantrum he does a fantastic job making silly faces to help Diego forget. Lyric made bronchitis with muscle spasms and a fractured rib smack dab in the middle of the holiday season a bit easier for his mom.
God bless him!
I made sure he knew how much I appreciated his 12 year old self coming to my rescue, and that is isn’t his responsibility to always step in when D is having a hard time.
As for me, recovery is on the horizon. I am looking forward to finishing this 5 day Prednisone taper and to my bones and muscles getting back to their normal recovered state. In the midst of this I have had our regional center intake, the social worker really seemed like she was on our side and would make a good case to the Regional Center Board. A school change may be on the horizon for Diego, as even being in the small class (8 kids total) isn’t helping him. In fact he is falling far behind and needs a lot more help than he is getting. I spoke with the school psych (Anthony) over at the charter school, and he was very receptive to my reports of D’s difficulties at the private school. He asked why we didn’t go public and chose private, so I went over exactly why we chose that placement. When I was finished he apologized for the evil vampire school psychologist and the experience we had. I explained to him that I was glad that we found out this way, because although D is having significant problems in the small NT class, it would have been much worse if it was in a large mainstream class with new kids in a new environment. Anthony said that he is going to visit Diego in his current placement and speak with the teacher, but that it sounds like D would benefit being in a public spec ed classroom and visiting a typical class. Anthony was nothing but empathetic, understanding, and validating. He doesn’t even really have to do this as D is private he isn’t on Anthony’s case list. But Anthony’s ‘special interest’ is autism and it shows. If for some reason I end up having any issues with the public school and getting Diego what he needs, I have a plan B. I met with an AMAZING advocate and she really helped me figure out why I was having such a difficult time wrapping my mind around the assessment that the vampire district did,the damn thing contradicts itself every other line and is not based on any concrete data. I won’t go into my dissapointment about the other advocate we had :(.
So that is school.
I just got a letter from my mental health insurance company that after a year of Diego visiting his psych twice a week for a year that they will no longer cover this because she is an assistant and not licensed. I am going to call today, submit my appeal and take it to the Dept of Managed Care if I have to. In the interim the head psych where Diego is seen has offered for Diego to continue at no cost. I will believe that when I see it. But never the less the situation is rough, complicated, and trying.
I am tired of fighting.
It shouldn’t be this hard to help my baby.
I got some of the wedding pictures back and had to share this one with you. Our photographer got quite a few fabulous shots of D at the wedding. I was so thankful for that because no body else had many, as Diego checked out early and had to leave.
So enjoy my little monster doing his presidential strut.
The pic makes me smile every time I see it. 🙂