Well I still probably have some crazy tendencies 🙂 ….but no one can tell me that I have ANY delusions when it comes to what is affecting my son.
We saw the neuropsych yesterday.
The neuropsych that told me, a year ago, that she really didn’t think that D was on the spectrum.
The neuropsych who, about a month ago, finally LISTENED to what I had to say and READ what I brought from our care team.
Her assessment was different this time, more attentive and very thorough.
We waited about 30 minutes for her to compile all of her numbers into a computer program,once this was complete she looked at me and said, “well this shows what you knew before I did…Diego has an Autism Spectrum Disorder.”
She said that the discrepancy between his academic functioning and his social/emotional functioning was huge, and that she can’t believe that she missed it. The ADOS picked it up and it also helped that his teacher accurately filled out her form. As we discussed various things I found that the neuropsych backtracked quite a bit, and I kind of felt bad for her.
She told me that I was getting Diego a majority of the services that he needed and that there wasn’t much that she could reccomend. She also said that I should “pat myself on the back” because I kept pushing for therapies despite the lack of a neuropsych diagnosis and that she was “very happy” that I followed up with her. She also mentioned that watching Diego’s brain work really fascinated her.
So here we are.
We finally have a diagnosis from a neuropsych.
I really didn’t think it would affect me much and I am surprised at how much it has. I think that since I didn’t have the official diagnosis from standarized testing that it allowed me to have this silly little window of doubt.
You know, that maybe (at 3am when I was up thinking about things) Diego wasn’t really on the spectrum. I knew he was, but denial can run deep and hide in tiny crevices.
So a bit of a reality check finds me sad today.
On the positive side of this , the neuropsych eval will help me get D autism services in the public school system next year and the Regional Center will not be able to screen us out. D also has his MRI next Tuesday to rule out Agenesis of the Corpus Callosum, they are putting him under general anesthesia, and I’m pretty nervous about that.
As far as school goes, Diego is doing a little bit better, although at his OT appointment on Tuesday his OT said she ahs never seen him so out of sorts. She gave me some ideas for home and I will find out if they work in the coming weeks. He was out of school on Tuesday and Wednesday for his various appointments, so tonight should be interesting.
It has been one hell of a week and just when I think there is a “break” on the horizon, there isn’t. I’m not sure there will ever be, some days may be easier than others, but this is my “normal”…..and all I can do is work on accepting it 🙂